Monday, April 29, 2013

One Year Ago...

One year ago tonight I almost lost one of the most precious things that I have in my life, my son Giovanni. I remember pleading with God, begging him not to take another miracle away from me. Tonight I sit here, staring at my little miracle, knowing that I have been given the greatest gift in the world. I will never take what I have for granted. I am truly blessed!


Saturday, April 27, 2013

Where to begin...

I haven't posted in quite some time for many reasons. First of all, I have been SO busy. Things with Giovanni (I will get into that), things with work, things with everyday life. I've also been struggling on a personal level as well. I'm not sure if I am going through an early mid-life crisis or what, but I've been thinking a lot about my life and its meaning. I don't feel accomplished or fulfilled. Yes, I know that I finished my Ph.D, which was no easy task, but now what? Where do I go from here? I am not going to go into details right now about my thoughts, but let's just say that I am exploring my options. There are a few avenues that I am looking at and I don't want to make any announcements until I am extactly sure how things are going to turn out.

As for Giovanni, he is doing well but not without any bumps in the road...of course! He finally got his helmet a few weeks ago and let's just say that it hasn't been a walk in the park.

He doesn't seem to mind wearing it, but his poor head is having such a hard time adjusting to it. He sweats profusely with it on and he keeps getting contact blisters/irritation.

 

He should have been wearing it 23hrs. a day by the end of the first week, but the poor thing has been going in for adjustments a few times a week, and we can't leave the helmet on for a long time until his skin toughens up a bit. Sometimes I feel like doing this was a mistake but I know that once we get through all of these inconveniences, I will be happy about the decision to proceed with the treatment.

Other than the issues with the helmet he has been doing great. His weight jumped from the 3rd percentile all the way up to the 8th so we were very excited about that. We were, however, completely unsuccessful in trying to reincorporate dairy. We tried offering him a teaspoon of yogurt as intrusted by his Gastroenterologist, but he was sick within a couple of hours and it lasted for days. We were told to wait another couple of weeks and try it again. It could be worse though, right?