Friday, March 29, 2013

Am I A Bad Mom?

Last Friday we went and saw the Neurosurgeon at the medical center for Giovanni's consult. The whole idea of this appointment was to rule out craniostenosis and determine whether or not a helmet was needed to help correct his plagiocephaly. The Neurosurgeon that we met with was wonderful. He was very personable and was great with Giovanni. I always get nervous seeing doctors "of that caliber" as I am convinced that they are intelligent freaks with absolutely no bedside manner as they just cannot comprehend normal human behavior. While keeping Giovanni entertained with his iPhone, the Neurosurgeon suggested that we do an x-ray to look at his skull. He did offer us a CT scan but I really didn't want to expose him to that much radiation if it was not necessary. He also agreed that if there was no sign of craniostenosis, which he suspected there wouldn't be, that it was time for a helmet as there has been a plateau in the progress we are seeing in physical therapy. Tuesday afternoon I got the call that the x-ray was all clear so we met with the place that does the helmets the next day.

His appointment with Hanger on Wednesday was pretty simple. All they did was take measurements of his head and explain the banding process. They said it would probably take 1-2 weeks to get insurance approval at which time they would bring us back to get his head scanned. Much to my surprise I got a call the next day letting me know that the insurance has decided to cover 90% of the helmet...which isn't too shabby. Today Giovanni had to go back to get his skull scanned so that they can have his helmet made.


He was such a little trooper! They had to do three different scans so it took about 10-15 minutes to complete them. I thought with the bonnet that he had to wear for the scan would absolutely freak him out but he was such a good boy! The technician even commented that he has never had a baby be so calm and relaxed during this procedure. That's my boy!

On top of all this, a few other issues have popped up. The first thing is that his physical therapist thinks that he needs to go be evaluated by a Neurologist. She is a bit concerned that his movements are a bit rigid for his age, and that he seems to favor his right side. I have been concerned about his jerky movements and the lag in his left arm since birth but his Pediatrician assured me that it was just because his nervous system was slow to develop. I have been complaining to my husband that Giovanni seems to shake a lot so my heart sank when his therapist mentioned this to us. She sent a letter to his Pediatrician suggesting that he be seen by a Pediatric Neurologist. The Pediatrician's office called me today to let me know that his doctor would like to discuss it further with us when we come in for his follow up in a couple of weeks. Now, I do like his Pediatrician, but she has a way of making me feel like a piece of shit mother. For example, when we went for his 6 month appointment she asked me if he was eating cereal twice I day. When I told her no, she snapped at me and told me that he needs to be...like I should have known this. I really wanted to limit his solids prior to 6 months as I didn't want to risk him weaning from breastfeeding, so I really wasn't pushing solids...and no one told me that I needed to. I can now only imagine what she is going to say when we go in and not only are we discussing a referral for the Neurologist, but he will also have his helmet...something she was convinced that he would never need. I guess I will have to put on my big girl panties and stick to my guns. Giovanni is my son, and while I am not a physician, I do think I know what is best for him.

To top of that drama, his Gastroenterology office called this week to check in on him. I quickly weighed him only to discover that he is losing weight! He dropped from 15lbs. 11oz. down to 15lbs. 1/2oz. This kid is eating 10oz. of amino acid formula a day which is fortified with oatmeal (total of 5tbsp), 15oz. of breast milk, 2tbsp of oatmeal mixed with 1.25oz. of breast milk and 2oz. of fruit, 2oz. of veggies, puffs, fresh banana, 1/2 slice of toast, and 4oz. of diluted apple juice (1:3 ratio)! I can't get him to take in anymore formula or breast milk, so that is why I am giving him all of those other things. If I don't give him all of the extras, he still won't take anymore formula or breast milk so this is the best way that I know how to get more calories into him. The nurse called me back after speaking with the doctor and the only advice she had to offer was to add cereal to his breast milk as well. Ugh! This poor kid shits out the top and sides of his diaper three times a day as it is and I can't even imagine what will happen to his poor little system if I up his cereal intake. I have to reweigh him next Friday and report back in for further instructions. If anyone has any experience with this and would like to offer support or would like to share their baby's menu with me, I would be very appreciative!

8 comments:

  1. I know it would probably be really hard to switch paediatricians, but I don't like the sounds of yours. Everything I've read has said that its best to wait until 6 months to start introducing solids. Emily hasn't even taken to them and at 7.5 months, doesn't have anything other than breast milk regularly and her doctor is fine with that, although Emily is in the 91st percentile for weight so we don't have that concern. But I think you should have a doctor that you feel more comfortable with, although I know that is hard to find.

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  2. I would switch doctors for sure. You are a first time mother - you need support and guidance not judnement! You are doing a great job!

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  3. Avocado blended smooth worked well for my low weight daughter. It has 50 calories per oz and we added olive oil for more fat. She would only eat an oz a day...but it worked. Egg yolk is high in calories and safe to eat before 12 months. It would take her 2 days to eat a whole egg yolk. I think you can add protein soon too, which has lots of calories. It sounds like your son is eating a lot compared to my daughter at that age. I would suggest stopping the juice and seeing if he poops less.

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  4. krystyn, you and giovanni have been in my prayers and will remain in them. you are NOT a bad mom...FAR from it. glad to hear that his helmet is mostly covered. i can't help but find that photo precious. you will be in my thoughts.
    i hope you and your family have a happy easter. <3<3<3
    maria

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  5. Sorry you're having such a rough time. Re: menu items...AVOCADO! it's very fattening and if you mix it with banana, it might be yummy enough. It's very nutritious too! Also, organic yogurt mixed w/ banana or mango. YUM. Maybe you can't do yogurt/milk products? (can't recall) Also eggs are good and have good calories. I boil lentils & carrots and puree them with veg broth. Organic blueberries pureed with yogurt but if you can't do milk yogurt how about rice milk yogurt??

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  6. We also did avocado with some breastmilk in it to thin it out a little. I agree with Dana above, we didn't start solids until after the 6 month mark either. I would probably seek out another pediatrician if this one makes you feel bad each time you're there.

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  7. I agree, it mght be time to switch Dr's. You need someone to support you! Have you tried oatmeal baby cereal, it really seemed to "firm" things up for my son. Also, if you would like my mom is nutritionist who has worked for WIC for 20+ years, as well as for DDSO, personal consultations and she is lactation consultant. She has a ton of experience with infants. I'm sure she would be willing to speak to you through email or over the phone. Let me know.

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  8. Helmets aren't a big deal and it's good you're being proactive about it. Callie has had one since January for her brachy, and we've seen great improvement. I'm not really help with the rest, sorry! We decorated Callie's helmet with rub-on transfers. Now that she's pulling up and cruising everywhere, I actually prefer the helmet on to prevent bumps and bruises. :) GL!

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