Friday, September 14, 2012

Needing Support

Last Saturday I posted about all of the issues I am having with feedings and my struggle to provide my son with breast milk. Since then I have realized that I am the only one that can deal with this situation as it is all my own. If I want the situation to improve I need to take steps to make that happen, not just bitch about how hard things are. Here is what I have done so far:
  • Contacted a private lactation consultant whom I am meeting with Saturday afternoon. I was going to meet with her this week and the LC from the hospital last weekend, but the onset of mastitis put a halt to that. Both my husband and I are meeting with this private LC for a 3 hour session. Her fee includes this initial visit plus unlimited email and phone support and a follow up visit if needed. 
  • Started taking Motherlove's More Milk Plus which is supposed to help increase milk production. This is an herbal breastfeeding blend the contains fenugreek seed, blessed thistle, nettle herb, and fennel seed. Not realizing that this particular blend didn't contain goat's rue, I ordered a bottle of seperate goat's rue (should be here next week) and I also ordered More Milk Plus Special Blend which actually contains goats rue for when I run out of this stuff. 
  • I am eating oatmeal every morning. Not only is this good for my milk production, but it is also good for my waistline!
  • I ordered a set of Pumpin Pals flanges for my breast pump as I have read incredible things about them. I just received them this afternoon and have only used them once but I can tell you that I love them so much more than the ones that came with my Medela. The prevent my nipples from getting irritated and they are also angled so I don't have to lean forward while pumping. I can actually sit back and relax. 
  • I have been using the Medela hands free pumping bra and while it is okay, I am not impressed by it. It stretches out after a few uses which allows the flanges to move during pumping which in turn leads to leaking milk. After reading through pages of support forums on breastfeeding, I decided to order the Simple Wishes hands free pumping bra. All the reviews say that it keeps the flanges nice and tight to your body and is strong enough to support the wight of the bottles filling with milk. I just checked the tracking and that should be delivered tomorrow afternoon.
My ultimate goal is to be able to exclusively breastfeed my son...with or without the nipple shield. While I understand that formula isn't going to harm him, breast milk is extra important because of my CVID and that is why I am putting so much pressure on myself to provide him with this. We will not know for months if he has been afflicted with CVID like me so right now it is so important that he receives what antibodies I have through my breast milk. While lactobacillus bifidus, lactoferrin, lysozyme, all found in breast milk, provide him with passive immunity, the most important component for him is the secretory IgA. As of my last set of blood work with my immunologist, my immunoglobin levels were normal which means that Giovanni is getting a normal amount of immunity from me. If he does in fact have CVID, with his underdeveloped immune system, breast milk becomes crucial as he gets this immunity from me and that is not something that is provided in formula. I am actually going a week from today to see the immunologist to see if it is necessary for me to start back on the IvIg transfusions. The pediatrician has also raised some concern regarding some of the scheduled vaccinations coming up at his 2 month appointment. According to the literature, infants of mothers with CVID should not receive the vaccination for Rotovirus, Chicken Pox, or the MMR. When I go next week to the immunologist I need to talk to him about that. If my immunoglobin levels are stable, and he is recrieving my breast milk, will that protect him enough to receive these vaccinations...that is the question we need answered. All I need is a very sick infant on my hands!


  1. It sounds like you have made some excellent plans and I wish you luck with all of them. Hang in there!

  2. I much prefer the simple wishes pumping bra...good choice. I did the exact regimen you did, plus took domperidone. It all helped. Best of luck!

  3. Sounds like you are taking all the right steps. Best of luck to you. Whatever breastmilk he gets will be a blessing. I had feeding issues with my 1st son and it can be incredibly overwhelming! The tea made a big difference with me and especially helped once I was back to work and pumping all day. I don't know what I would have done without a LC (my mom)on call for me all the time. If you are not happy with the one you have contacted she's does phone consults and is extremely reasonably priced. She outside of Utica and has a talent and passion for helping moms breastfeed successfully. Let me know if would likee her info.

  4. When I was having issues with amounth of milk i was producing, I drank A LOT of water. I was drinking it constantly and found my production increased quite a bit. Good luck with the feedings!

  5. are you using a hospital grade pump? i rented a symphony for 6 months it was amazing!

    way to go on finding ways to help! you can do it! i solely pumped for my twins till 7 months.

  6. I just found you on Mo's blogroll so I have no backstory. If this is total assivce, then I apologize. Can you do Domperidone? I exclusively pumped for 13 months with my DD. I barely kept up with her but I wouldn't have been anywhere close without it. I accidentally spilled a bottle I'd just pumped and literally did cry because I was so committed to breastmilk. I stopped taking it in the last month of pumping and my supply dropped off precipitously.

  7. Hi,

    I stumbled on your blog while reading some others, and have stuck around because we are from the same area. I have a 7 month old and had many of the same feeding issues. After my 4th round of mastitis, I was prescribed All Purpose Nipple Ointment. It's a pain to find a compounding pharmacy(I used Fallon's in Latham) but it made ALL the difference for me.


  8. Way to go mamma! I wish so badly I would have tried longer and harder now on breast feeding! Keep at it because it will be worth it in the end!!

  9. I hope it's going well and you can meet your goals for bfing - so many good reasons to keep at it!