Monday, November 14, 2011

Quick Update

I am still recovering from the lap/hysteroscopy. I have been pretty sore over the past few days and I can't wait until it starts to feel better. Only two out of the three incisions hurt, but only when I bend forward or wear pants...something that I really can't avoid. For some reason the incision in my belly button is really pinchy and itchy which I hope means that it is healing. Having my pants rub on it isn't too comfortable, but everyday it is getting a little bit better. The part that I am most aggravated about is the bleeding. I figured that the bleeding would start slowing down by now but it hasn't. I am going through 6 or so pads a day which is a total pain in the ass. Since the bleeding is still continuing on, I am going to stay on the pill until it stops. I just finished my one pack on Saturday so I am on to another. I have absolutely no intention of staying on it the whole month, and actually, I am hoping that the bleeding will stop by the weekend so I can stop them and get AF by next week.

Tomorrow is my consult with Dr. Braverman. Today I went ahead and had Rosalind Franklin email me the pages of results that they had for both me and my husband. I am happy to report that my husband and I only have 3 partial HLA matches so that is wonderful news. The rest...not so much. My CD3 and CD4 cells are quite high which is commonly seen in immunology patients with recurrent miscarriage (well thank you Captain Obvious!) My NK (natural killer) cells actually increased when IvIg was added to my blood which is a bit odd, but without it, I am pretty much in the normal range. My MCH and MCV are elevated along with my monocytes, eosinophils and basophils. I personally am not too concerned about these. I looked back at my previous labs and all of these have consistently been elevated. I don't know much about MCH and MCV but I do know that they are related to the size of your red blood cells and apparently mine are a bit large. Not sure what it means though. My cytokine ratio is a bit elevated which I don't think is a big deal now, but typically it goes up with pregnancy and that is an issue. The only one that I am REALLY confused about is the Leukocyte Antibody Detection (LAD) test. Some of my numbers are elevated which I think is a good thing, but others are very low. Also, something called the LAD flowcytometry is negative, and from everything that I have read, it should be positive. Again, I do not know much about these tests. I did quickly shoot Dr. Braverman an email tonight (he always gets right back to me) and he said that it is difficult to draw a conclusion based on the test that indicates that my NK cells increase with IvIg when they should actually decrease. He said that the only way to know how accurate this is, is to retest them with IvIg after it is infused. It is scary to think that IvIg could actually have hurt me more than helped me! I do have a feeling though that since Neupogen is most likely in my future, that I will not be needing IvIg transfusions anymore...and that makes me VERY happy.

I will update tomorrow after my appointment.

1 comment:

  1. Krystyn,

    I am so glad that you are healing well from your surgery. I'll be praying that the bleeding stops for you soon.

    I hope the appointment with Dr. Braveman goes really well and can't wait to hear the update.

    Talk to you soon.