Friday, June 3, 2011

What A Nightmare

When I woke up Thursday morning for work and saw that I was bleeding again, I knew that something wasn't right. I immediately contacted CNY and told them that I had started bleeding again and I was wondering if the Viagra was causing it. They told me not to discontinue anything and to let them know if it got worse. Throughout the day the bleeding rapidly increased, however, I was in county meetings all day and there wasn't anything I could do about it. After I dropped my colleague off at his car at around 4, I just started crying and felt a bit panicky. Even though CNY closes at noon on Thursday, I still ended up calling the nurse manager (my favorite) and told her what was going on. She said that I should try to hold of (our local ER sucks) but if I start bleeding through a pad an hour that I need to go. All night last night I kept worrying as the bleeding was getting worse. At around 5am I ended up putting myself into a full panic attack and actually jumped out of bed and ran outside as I thought I was suffocating. My husband heard my squeaky gasps for air as I was trying to cry and hyperventilate at the same time...that doesn't work too well! He finally got me to calm down and I managed to get about 2 hours of sleep before I had to get up for a conference call for work. 

At this point I am still bleeding a great deal but I know that my appointment is just around the corner so I do my best to keep myself occupied until then. When I arrived at CNY they did an ultrasound and said that I had several small follicles on my left and about three or so on my right (my right ovary sucks!) While I was waiting for my RE, the nurse popped back in to let me know that they got the levels back of my Anti Mullarian Hormone (AMH) which determines ovarian reserve. I could tell she wasn't happy so I braced myself. It was only 0.67...normal is 2.5! So now we know that I officially have the diagnosis of diminished ovarian reserve and my chances of IVF success are much lower than what we originally thought. My RE then came in and performed a very painful 10 minute examination to determine the source of the bleeding. He said that the opening of my cervix is bleeding for absolutely no reason. He said that he is hoping that as my estrogen levels increase the bleeding will stop. If they do not, we will have to cancel this cycle. If that wasn't enough, the  nurse called me on my way home to let me know that my estrogen levels were too low and I was not responding to the stimulation meds...not good! They upped my Follistim and Menopur from 225 to 300 each...and to think that when I first started this process all I needed was 75 units of Follistim and I responded beautifully. So in 16 months, the health of my ovaries has declined dramatically! 

So now I have to wait until Monday to see what is going to happen. Best case scenario is that my body responds to the increase in meds, my estrogen goes up, my follicles begin to grow, and the bleeding will start to slow down or come to a stop. Worse case scenario is that I don't respond to the meds and we have to cancel this cycle. My monitoring appointment is at 1pm on Monday. At 11am I have to have my IvIg transfusion so I am hoping that they will be willing to draw my blood for the estrogen levels when they start the IV for the transfusion. This way I will know what the plan is that much sooner. God, I hope I survive this weekend!   

1 comment:

  1. Call me anytime if you want to discuss any of this. I've literally been through everything you are going through - bad AMH level, DOR diagnosis, low estrogen, facing a possible cancelled cycle, and bleeding for no reason. I've always felt like I haven't had much advice to offer to you because our journeys have been so different...that I could only offer support. But now I can offer both, if you want them. It stinks that you won't know until after IVIG about the status of the cycle. Hopefully, everything will turn around for you this weekend and by Monday your cycle will be back on track. Again, I'm here for you any time.